Legal Disclaimer
None of the information presented here is original, having all been gleaned from many, many, hours of research on the subject.
Only a few of the images found on this site are our own and credit is given, whenever possible, for the borrowed information, clip art, and photographs. If you find that we've missed any due credit, please let us know and we will do our best to rectify the situation.
The authors of this site have no medical background. The information found here should not be used as a diagnostic tool, but is simply our interpretation of the information we've gathered. At best, this might be considered a rough guideline of what one might expect of the medical, physical, and mental capacity of a person with Carpenter Syndrome.
This website was created as a means of making sense of this condition ourselves, after the arrival of our second son, Jacob. It quickly evolved into the desire to put a more humane face on it, hopefully saving others who came after us from the sterile information and frightening images that always seem to pop up first upon any web search, but has grown into an outreach for other families who are looking for answers and the mutual love, respect, and acceptance that can really only be found in others who have "walked in our shoes".
Only a few of the images found on this site are our own and credit is given, whenever possible, for the borrowed information, clip art, and photographs. If you find that we've missed any due credit, please let us know and we will do our best to rectify the situation.
The authors of this site have no medical background. The information found here should not be used as a diagnostic tool, but is simply our interpretation of the information we've gathered. At best, this might be considered a rough guideline of what one might expect of the medical, physical, and mental capacity of a person with Carpenter Syndrome.
This website was created as a means of making sense of this condition ourselves, after the arrival of our second son, Jacob. It quickly evolved into the desire to put a more humane face on it, hopefully saving others who came after us from the sterile information and frightening images that always seem to pop up first upon any web search, but has grown into an outreach for other families who are looking for answers and the mutual love, respect, and acceptance that can really only be found in others who have "walked in our shoes".
Additional information you might want to consider while perusing this website.
A) We are pro life. I won't apologize for it, but I will explain why it matters here. We live in the real world and are aware of the fact that expecting a child with known differences may trigger thoughts in some people of prematurely ending a pregnancy, and we want you know there are other options that won't condemn you to a lifetime of sorrow and regret. If you've found us because you are expecting and have heard that your child is affected by some seemingly overwhelming condition and the thought of abortion has crossed your mind, I implore you to please, please, PLEASE, reconsider. I'm reminded of the beautiful lyrics of Nickelback's song, Lullaby, "If you can hear me now I'm reaching out to let you know that you're not alone." You really are stronger than you may think, and you are most assuredly not alone! Even if you don't think you can do this yourself, there are so many people out there, who, like us, would be forever grateful for the opportunity to love any baby as special as Jacob... or Abby... or Connor... or Tamara... or Shan (the only people we've ever heard of with Carpenter Syndrome!)
B) We are born again Christians. As sinners who fall short of the Glory of God, we acknowledge that we have made (and continue to make) many mistakes in life, and because of that we try very hard not to judge others, regardless of our personal views. So, please feel free to contact us if you think we may be able to help in any way.
So... we ask that you use the information on this website in the spirit it was offered, with love and gratitude for our many blessings, with one of the most appreciated being our son, Jacob, who is the light of our lives... and, incidentally, has Carpenter Syndrome. His adoption (as an infant out of the California foster care system) was one of the best decisions we've ever made. The fact that I did not birth him doesn't change the absolute reality that Jacob is all mine! Regardless of our lack of shared genetics we love this precious soul like no one else ever could, except our Father God, and are so incredibly thankful that his birth mother did not exercise her legal right to choose, ending this precious life.
